If his meds stop working - which happens unfortunately often—his next step is infusion therapy. After that, the only solution left is to have his colon removed. Even if he remains in remission the rest of his life, which would be wonderful, he will have to have a colonoscopy every year beginning when he turns 21 because of a significantly increased risk of colon cancer, and needs to have laboratory tests a minimum of 4 times a year to make sure the chemo drugs aren't destroying another part of his body.
You will excuse me if I find it hard to make an analogy from this to a condition which does not damage the intestines, does not affect cancer risk, is treatable by OTC medication, and may require you to alter your diet.
I applaud every person with UC and Crohn's who gets out of bed in the morning to do anything at all, whether they get on TV or not.
They are heroes to me. I feel for you and your son. Crohn's has affected several members of my family as well, and I wanted to pass along that after thirty years of every treatment imaginable,a combination of the specific carbohydrate diet and low dose naltrexone has put my uncle into long term remission.
LDN is safe, relatively side effect free, and generic. They're worth looking into. Hope your son stays in remission! Stop eating gluten and high fructose corn syrup; and your IBS will go away. I was diagnosed with ulcerative colitis and IBS. No amount of medication helped. I went to an Integrative Physician and had numerous blood tests done.
I had Celiac Disease all my life and never knew it. YOu do not need remicade, prednsione, canasa , suflasalazine, penasa and many other toxic drugs to fight IBS. Nor do you need to have continual scopes with biopsies to check for pre-cancer so they can remove your colon before you develop cancer as I did this year HUGE difference. Educate yourself people. Without the toxic, nasty meds to treat IBD,many of us sufferers would not be alive to talk about the disease at all.
Unfortunately, the medications to treat the disease and suppress your immune system asr as deadly as the disease itself it. IBD is cleary the ugliest disease known to man. Please band together people and donate money to find a cure for this horrible illness that sucks the life out of everyone inflicted by it.
Another friends young son 6 years was diagnosed with pediatric IBD! It's great that Casey Abrams is calling attention to these illnesses, more power to him in his music career!! Casey, Keep fighting. As a UC sufferer for 25 years who recently underwent colectomy and jpouch surgery, there needs to be so much more time, money and energy invested in finding a cure for t his incredibly debilitating disease.
I would not wish it on my absolute worst enemy. This disease robs you of joy, social activities, your passions, energy and your dignity. If only more celebrities and high profile people would come out and support the the search fo ra cure, we would be that much closer.
As a former crohns disease sufferer I am not an expert on crohns disease, but I am an expert on my crohns disease and only speak from my experience. My experience is none of the meds worked for me. I had to go the alternative route and use diet as my medicine. Through use of the combination diet I was able to find complete relief. I wish you the best because I know what you are going through. I wouldn't have known about your pverious illness until I actually read about it.
You are a remarkable professor. I pray that your illness will not return, nor does it affect your girls. Stay strong, and never give up. You are to be commended on your recovery. Everyone should try using a natural product, bee Propolis. He has now been 10 years without an medication. Bee propolis is a anti inflamitory among other things. If this did not stop it, then it was one of God's miricles. Follow the link. I am also writing to let you know of the impressive discovery my wife's princess undergone reading through the blog.
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Next entry » What the Yuck: Scented soap 'down there'? Maybe more people who need it may get help. So I'm glad for the openness and honesty. It helps others, indirectly.
Good article! September 30, at Report abuse Reply. Bob I'm glad that he is doing so well. And I take Remicade [known generically as infliximab, a medication that helps prevent inflammation in the intestinal tract]. But if you have it, you have to talk about it, you have to see a doctor.
I thought it was a bug--I had stomach cramps, I was getting more pale and I was losing lots of blood. A: I thought it was the end of my career and that if I ever wanted to do something along the lines of touring and going across the U.
But I talked to my doctor and got the right remedies. I wanted [the show] to be all about the music. And I think it was. All Sections. About Us. B2B Publishing. Business Visionaries. Hot Property.
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